Free tool

Free Printable Sickle Cell Pain Diary

Download a free one-week pain diary built for sickle cell: daily pain scores, body areas, triggers, fluids and what helped — plus a summary page to take to your haematologist.

How to use the pain diary

  1. Print a week at a time and keep it somewhere you'll see it.
  2. Fill in one row each evening, even on pain-free days — a 0 is useful information too.
  3. Use the 0–10 scale the same way every time. Anchor a few numbers to memories, such as "my 8 was the crisis that put me in hospital".
  4. At the end of the week, fill in the summary page and note any patterns.
  5. Take a few weeks of diaries to your next appointment. Read how to track sickle cell pain for more tips.

The 0–10 pain scale

The diary uses a standard 0–10 number scale, the same kind most clinicians use. Here's a guide to keep your scores consistent:

  • 0 — No pain
  • 1 — Barely noticeable
  • 2 — Mild, easy to ignore
  • 3 — Mild, noticeable
  • 4 — Moderate, distracting
  • 5 — Moderate, hard to ignore
  • 6 — Hard to concentrate
  • 7 — Severe, limits daily life
  • 8 — Severe, hard to function
  • 9 — Very severe
  • 10 — Worst imaginable

Frequently asked questions

This tool gives general information, not medical advice. Always follow the plan agreed with your own care team. Read our medical disclaimer.

Track it every day with Hemo

Turn what you note down here into a daily habit, with trends and summaries for your care team.